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Question from Patrice B: What does it mean for you if doctor says you have a “some scarring” on your liver?
I have hepatitis c. I have not started treatment yet. The doctor says I can wait to start after the holidays are over (want to try to enjoy this season). She did also say that my biopsy showed “some scarring” to my liver and she mentioned the c word (cirrhosis). She didn’t say that I have it though. She also said that “you have 20-30 years before you have to worry about that”. I was so upset at he time that I didn’t ask her to elaborate. I am really upset about this whole thing. I don’t even know how to go on with my life…..what does this mean for me? I am only 28 so will I die between 48-58 of cirrhosis? I am not married, no kids, and I probably won’t ever. the plan for my life is completely shot to hell. And I feel like there is nothing I can do to help myself.
Best answers:
Answer by dumplingmuffin
it means its damaged
Answer by formerly_bob
Some scarring means that some irreversible damage has been done to the liver. Scarring in the liver and cirrhosis are synonymous, so the diagnosis doesn’t mean you have a conditions where your liver is doomed. The scarred part no longer performs any function but the liver is a huge organ and it can sustain a lot of damage before it causes health problems.
Damage from hepatitis C can follow all sorts of paths. Some people get no damage. Some people have several flare ups over a life time, and minor damage is done each time, but there are problems caused by the damage, and some people have a gradual and progressive decline in liver function. There’s no way to know for certain what will happen to you in the future, but at the moment, you have fully-functional liver, and it appears from the doc’s comments that the damage is not progressing at this time. Maybe it will never progress again.
Even in the worst case of progressive damage, it usually takes several decades before liver function declines to the point where it starts creating health problems. If your liver was eventually destroyed a few decades from now, you might be able to get a liver transplant from a living donor. In 10 -20 years they might even have a more effective treatment or cure. All you can do in your situation is just go on with your life as you would if you didn’t have hep C. Your prognosis at this point is still pretty good and the odds are still in your favor that this condition will never have much of an impact.
I have had this for 35 years and up to this point, it has never caused any symptoms.
Answer by Baa Baa
It means that you do have some cirrhosis of the liver. Cirrhosis is when healthy tissue in the liver is replaced by scar tissue. This is happening to you because you have the virus hep C which attacks the liver which can cause this kind of liver damage. Many people have hep C and lead happy productive lives. A prime example of this is Pamela Sue Anderson and she looks quite healthy and happy and certainly lives a very interesting full life. She also has children.
I was told I had cirrhosis from an autoimmune disease except my liver was already 90% destroyed with only 10% function left. This came as a shock to me but as long as there is options you do not need to crawl in a hole and die. You need to pick yourself up and start living again. I was devastated at first, but I got over it. I decided to fight my cirrhosis with everything I had which was that I had to get a liver transplant first or I was going to die. Your doctor says you don’t even need to worry about that for another 20-30 years and that is just a maybe. You could very well take the treatment and clear the disease and never have to worry about it again. Not everyone who has hep C has to get a transplant or it kills them. You really need to do some research and learn about hep C and cirrhosis.
If worse comes to worse in 20-30 years and you then need a transplant, then you go and get yourself one. Who knows what technology will be like then for transplants since they have come so far in the past 20 years. These surgeries used to typically take 16 hours and now they can do them in as little as 5 hours for some. They even have what is called bloodless transplants. There is living donor transplants that you can get from someone willing to donate to you which is usually a close family member. And the technology is bringing in new things all the time. I really believe transplants will greatly advance in the future.
So here I am still. My liver was shot and that was back in 2004. Today I am happy and healthy and still alive. I plan on being that way for a very long time until I am a very old woman. I got my transplant. I did not give up or feel sorry for myself so don’t you do that either. You are in a much better position that I was back in 2004 when I was diagnosed with cirrhosis. You go on and live a happy full life just as you always planned to do. Make sure you have a good doctor who specializes in liver disease to treat you. There is lots you can do to help yourself and the first thing you can do is learn to accept your condition and enjoy the season like you planned. Let’s hope you will be one of the lucky ones that will never even need a transplant which is quite possible. Wish you the best.
Answer by abijann
Hepatitis C is a virus that enters the patients body and
uses the liver cells to replicate it self. When it uses the cell,
that cell dies off and it uses others. The doctor can measure
the increase of this virus, in the viral Load.
People have lived for 40 years or more with Hepatitis C.
[many develop it through no fault of their own]
The liver will generate new cells to replace the ones that have
died off. It can keep this up for awhile. However, as the
viral load of this virus keeps building up in the liver…the cells
start to die off at a much faster rate and then it gets to the point,
that scar tissue starts to form inside the liver.
You can think of scar tissue as a wall. It can block the flow of
blood to the functioning liver cells (and also the newly
regenerated ones) and they will continue to die off.
Eventually, it can lead to where it blocks the flow of blood
through the liver on its way back to the heart.
Cirrhosis is death of the liver cells and scar tissue formation
inside the liver.
With treatment and following the doctors advice, this disease
can be slowed down and you will have a much longer life.
Apparently, the doctor feels that this is already taking place.
Hepatitic C is mostly transferred to others though blood contact.
People who have this disease, should use protection during intercourse.
Very rarely, people can receive the Hepatitis C virus because the
mucosal barrier is broken.
You should try to become a member of a support group, there are
many on Yahoo Groups. This will help you understand better what
you may be facing in the future.
Here is a slideshow and some movies about this virus:
The movies starts out as being one about the liver, with many
others you can click on afterwards about the virus itself.
Also, some links you may find as a help:
http://hepatitis-c.emedtv.com/hepatitis-c-video/the-human-liver.html
SLIDESHOW: http://www.webmd.com/hepatitis/slideshow-hepatitis-overview
http://www.medicinenet.com/hepatitis_c/article.htm
http://health.groups.yahoo.com/group/HepCnetNewsletter/?yguid=40163860
I hope this information has been of some help to you.
I wish it could be quite different than what I stated.
No one deserves to have to face a disease like this.
However, many do and they can help you realize you are not
alone and that they will help see you through it. Best wishes
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